Dr. Susan Sage Heinzelman, Director 2505 University Avenue, A4900, Burdine Hall 536, Austin Texas 78712 • 512-471-5765
Barbara Jones - New Faculty Colloquium
Fri, April 7, 2006 • 12:00 PM - 1:00 PM • GEB 3.312
When a child is dying, the physical, psychosocial and spiritual needs for the child and family are immense. Children and families experience a devastating life event with immediate and long term impact on quality of life, activities of daily living, family dynamics, self identity, parental role, and sense of meaning in the world. Consequently, palliative care for children is qualitatively different than care for adults due to the developmental status of children, the untimely loss of human potential, the central role of the family in decision-making and caregiving, complicated issues of pain and symptom management, and the legal and ethical status of children. Pediatric oncology social workers are often intimately involved with addressing the psychosocial needs of dying children and their families. This mixed-methodology study of 131 pediatric oncology social workers presents the previously unheard voices of social workers as they describe their perspective of the needs of children with cancer and their families at the end of life.